Saturday, 22 June 2019

Danielle's flutterbyes (Reg charity in England & Wales 1162123)



The Charity that "ontheroadblog" has chosen to work with for season 2019-2020 is Hucknall based "Danielle's flutterbyes" (Danielle's word for butterflies when she was a youngster).

Danielle's Flutterbyes was set up by Danielle's mum Ruth, sister Sarah and good friend Fiona, and is Registered Charity no. 1162123.

Danielle's story is heart-breaking - please take a couple of minutes to read, and I'm sure you will agree that any money that Kev and I donate will be going to a worthy cause.

Unlike previous charity blogs (based on goals scored), this season we will stick £1 per game into a pot for every game we get to throughout the season. I will try to beat my last season's total of 330 games (aiming for 350), whilst Kev will do as many as his illness and family needs will allow.

I reckon £400 should not be too difficult a target, but time will tell. We hope to donate £200 by the end of December, then a decent balance at the end of the season. We will not be actively asking for outside donations, but we will certainly not turn them down! 
                    


The Charity mission:-
"Our mission is to help young adults living with kidney disease between the ages of 18 and 30. We also educate the general public on how to spot the early symptoms of kidney disease, what their kidneys do and how precious they are. Following the loss of our Danielle to kidney disease we decided that we must do something to help young people living with this terrible illness. Kidney disease has no cure, you can only prolong life by receiving a transplant or dialysis. People receiving treatment have to endure so much. It's extremely invasive, not only to their bodies but also their lives. 
Dialysis for 4 days a week and 4 hours per session leaves very little time for a job, hobbies, friends or social life, the things young people should never have to go without. After watching Danielle go without all of these things for so long and losing her battle so young, we decided for young adults living with this disease, we must do all we can to help put a smile back on their faces, help them do something fun, help them to feel like they have friends and people that understand, help them to feel more comfortable whilst receiving treatment so they don’t skip treatment and most of all help them to feel that life is worth living and fighting for."

Ruth, Sarah and Fiona